Practical resources to help family caregivers in the midst of caring for someone

Apathy as a symptom of dementia

Apathy can be seen as indifference, as passivity, a lack of interest or enthusiasm or the loss of initiation. People with dementia may lose interest in activities or hobbies they once found interesting and fun. They often have trouble coming up with ideas for activities and may rely more on others to come up with things to do. Apathy is one of the most common symptoms of dementia, and the person with dementia is usually not aware of or bothered by it. Caregivers on the other hand may become tired and even frustrated in their efforts to engage the person. Read on to learn more about apathy, how it is different from depression, and get some tips for caregivers on how to cope and help a person who is living with this symptom of dementia.

A person with any type of dementia can have apathy, but it is particularly common in frontotemporal dementia. Apathy can start at any stage of dementia but often develops early on and becomes more prevalent as dementia progresses.

Types of apathy

  • Affective Apathy: This apathy involves lack of emotional sensitivity. The person may appear to be indifferent and not to care about others. It can come across as lack of warmth or empathy. There may also be an absence of emotional responses, rarely showing emotional responses to both positive and negative events. For example, if a person hears their only granddaughter is having a baby,  or that someone they know has died, they may have no reaction.
  • Behavioural Apathy: Behavioural apathy impacts the person’s ability to start and/or participate in tasks such as household chores, or hobbies, doing activities of daily living, seeking social activities, or getting exercise. For example, a person who attended bingo every week, or took daily walks, may choose not to go even if they previously enjoyed it.
  • Cognitive Apathy: This apathy involves problems with initiating a cognitive activity or conversation. Their interest or curiosity in learning new things may be diminished. And, they may show a lack of concern for their own personal issues or what is occurring around them. With the inability to initiate a conversation, you may need to prompt the person with verbal cues.

Is it apathy or depression?

A common question many caregivers have is whether the person with dementia is depressed: “He just sits there doing nothing. Is he depressed? ” Given the symptoms of apathy described above, it is understandable that this question arises.

While apathy often resembles depression, not everyone with apathy is depressed. It’s important to note that apathy is not the same as depression. People with apathy don’t typically have feelings of sadness, dissatisfaction, hopelessness or thoughts of worthlessness. They might appear or feel uninterested, disengaged, or unexcited, but are not necessarily depressed. If you are concerned, it is best to talk to your health care professional.

How can I cope with apathy?

Recognize that the person with apathy is not intentionally refusing to participate in activities and is not “lazy”. Nor does it mean the person “needs to try a little harder” or just show some “spark” of interest. Remind yourself that the apathy is likely a symptom of his or her disease. You can try to find out why the person is not able to do their usual activities. Questions to consider are:

  • Have they forgotten how to do the activity? or
  • Are they forgetting to do the activity?

Tips on what can help

  •  Set up an easy daily routine with a schedule, calendar and reminders. A person with apathy may find it easier to start an activity once it becomes a habit.
  • Tailor individual activities to longstanding interests to capture their attention.
  • Initiate an activity (e.g. eating) by using verbal cues or hand-over-hand technique. This may be enough to help the person to complete the task or activity independently.
  • Break down the activity tasks into smaller steps.
  • Go on regular outings or to a regular drop-in program (when such programs are resumed post pandemic).
  • Try different ways of suggesting activities. For example, instead of asking, “Do you want to go for a walk?” you can say, “It’s time to go on our afternoon walk” and hand them their coat and shoes.
  • Use the things that the person still enjoys to help them get moving. For example, make their preferred foods, have visits with grandchildren, listen to favourite music or watch a movie or show they have enjoyed.

A cautionary note about watching television. Before the person was affected by the symptoms of dementia, watching television may or may not have been a routine part of everyday life. With apathy, the person may sit in front of the TV for long periods, no matter what program is on.

In a study questionnaire, relatives of persons with dementia responded that the physical closeness of others seemed to affect the habits of watching television. What mattered most to the person was sitting with someone close to them. Whenever possible, watch TV together. It can make this passive activity t more meaningful with the added benefits of stimulation and social interaction.

Tell us about a time or activity when you tried to engage someone with apathy.

 

Leave a Reply

Your email address will not be published.





  • Bill Hayden
    Sat Oct 23 2021, 05:59
    Yes!!!Many many neurologists even need to read this!!Thanks Bill
  • Arlene Alvarado
    Thu Mar 10 2022, 09:42
    Hi, my dad sits a lot, has stopped doing all the things he use to do ☹️ What he really likes and is good at is, I get a balloon and we play volleyball.. I’m standing as he is sitting and we it the balloon to each other!! I cannot believe how good he is at it!!! I get tired before him!😁
    • JaneVock
      Mon Apr 18 2022, 12:07
      I love this idea Arlene. Thanks for sharing!Jane
  • Edwina Cormack
    Thu Mar 10 2022, 23:16
    Hi, I’m so grateful for this article as this is exactly what I’m living with. It is soul destroying to see my husband come home having been out, turn on the TV and then just lie down on the couch and sleep. What gets him off the couch is a drink, V, food, cigarette and the toilet. He is an intelligent person still playing bridge though not as often but life isn’t easy, added to which is another condition which is robbing him of mobility. And….. he’s not old. Thank you again.
    • JaneVock
      Mon Apr 18 2022, 12:06
      So glad to hear you found this article helpful Edwina.Jane
  • graliontorile
    Fri May 20 2022, 09:24
    Real nice design and wonderful content, nothing else we want : D.
  • zoritoler imol
    Wed Jun 15 2022, 14:34
    I just couldn't go away your website prior to suggesting that I really loved the usual information a person provide on your guests? Is going to be back continuously to investigate cross-check new posts
  • gralion torile
    Thu Jun 16 2022, 03:35
    I intended to put you one tiny note to finally give thanks as before considering the great concepts you've documented in this case. This has been certainly wonderfully generous of you giving extensively just what numerous people could possibly have sold for an e-book in making some dough for their own end, mostly considering the fact that you might well have done it in the event you considered necessary. These good ideas as well served to be the great way to recognize that many people have the same desire really like my personal own to understand more and more around this problem. I am sure there are lots of more fun opportunities up front for people who looked over your site.
  • gralion torile
    Sat Jul 09 2022, 23:02
    Yeah bookmaking this wasn't a bad decision great post! .